Downloadable materials
Stories from the PBC community
Hear from others in the community about navigating treatment, symptoms, and life with PBC.
Chris
"My body was trying to tell me something, and I needed to listen.”
Susan
“It’s like my tank is running on empty before I’m even halfway through the day.”
Kathy
“I was extremely fatigued. But I thought that was just parenting.”
Amber
“When I’m exhausted, I’m forced to choose if I can be a mom or call for extra help.”
PBC organizations
Learn more about PBC and find additional support through these prominent PBC foundations and organizations.
American Liver Foundation
Find news and information on liver diseases, support system resources, and information about programs, events, and clinical trials happening near you
Friends of the PBC Foundation
Providing people living with PBC with education, tools, and community support to help navigate everyday life
PBC Awareness
Specialized support, education, and advocacy to address the growing challenges and unmet needs within the PBC community
PBCers Organization
A resource for education and support for people with PBC and their supporters. The group also raises funds for PBC research
PBC Research Foundation
Advances research in PBC by collecting patient-reported data and supports scientific collaboration to improve care
